Tentative diagnosis

Well, I have a tentative diagnosis. The interist thinks it is very likely that I have cushing's syndrome. So, I go for a new round of tests Friday to find out what kind I have, so i can start a treatment plan.

I'm in a weird place. This sort of makes it real, but yet not real. I don't want to go to work, but well, I have to. I just want to go to bed and sleep, which is what I usually do when depressed. I thought I'd be happy with an answer, but I have a head ache. My DH reminds me that it is only a tentative dignosis, even if it makes sense.

Cushing's Syndrom http://www.niddk.nih.gov/health/endo...s/cushings.htm
Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of the hormone cortisol. Sometimes called "hypercortisolism," it is relatively rare and most commonly affects adults aged 20 to 50. An estimated 10 to 15 of every million people are affected each year.

... Treatment depends on the specific reason for cortisol excess and may include surgery, radiation, chemotherapy or the use of cortisol-inhibiting drugs. If the cause is long-term use of glucocorticoid hormones to treat another disorder, the doctor will gradually reduce the dosage to the lowest dose adequate for control of that disorder. Once control is established, the daily dose of glucocorticoid hormones may be doubled and given on alternate days to lessen side effects.

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3/14/05 banded
Never give up. Never surrender.--galaxy quest

Breaking the laws of thermodyamics daily

My Journal http://vinesqueen.blogspot.com/
Cushing's help site http://www.cushings-help.com/intro.htm

I'm not sure if I should say GOOD! It's about time they figured out the problem, or I'M SORRY. For me, I'd be somewhat relieved that it was something that can be treated fairly successfully. Cortisol is related to insulin-resistance...so it makes a weird kind of sense. (((hug))) YOu'll get all the details, and hopefully this will open a door for you. I wish you the best, whatever the case, and whether you're asleep or not. Cindy

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Mousecrazy
Banded 7/22/05 by Dr. Marsden, Lewisville, TX
286/200/180 goal
1st fill: 8/25/05 .5cc
2nd fill: 11/10/05 .2cc
3rd fill: 7/27/06 .6cc

Vines, it sounds as if the diagnosis isn't final. According to the NIH page you cited, specific tests (including the painless urinanalysis) are needed to determine if you have Cushing's. The page also indicated that the microsurgery used to treat the most common form of Cushing's has an 80% success rate -- not perfect, but pretty damn good.

I'm embarrassed to admit that the only creature I know with Cushing's is a happy and healthy old Weimaraner who just takes daily pills.

Hang in there. We're rooting for you. If the tests are on Friday, when will you get results and the specialist's diagnosis?

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Banded 8/26/04: Dr. Rumbaut, Monterrey, Mexico
Fills 10/13/04; 1/21/05: total 1.8 cc, Drs. Horgan & Baptista, Chicago
5'9" 273 high/264 presurgery/197.5/164

Vines, I am keeping my fingers crossed that this will work out for you. Please keep up posted. Hugs!

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Betty

Surgery/Oct. 18, 2004
-92 pounds!




I believe there are Angels among us!

"Life is about creating yourself"

Just the thread I have been waiting to see. Hang in there, Vines. It takes a minute to wrap your brain and emotions around it. Take a big long nap, then a big long walk, then a big long shower. (here's where I'm tempted to insert something trashy, yet funny...along the lines of "big and long" so lets pretend I did and see you grin ;) )

I'm no medical expert, but the cortisol connection makes sense to me in regards to weight loss. You are on the road, now! And we are here with you. ((((hugs)))) and keep us posted.

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Kathy-Dr Kuri~April 8,2005~Inamed 9.75mm/4cc
Fills 7/11/05~10/19/05~11/16/06 .75cc total
242high/223.4surgeryday/173.6current/145goal
BMI~40.1/37/28.9/24
~5'5" 68% of excess weight gone!~
36.5 total inches lost so far! (updated 9-12-06)

How interesting! I remember the rollercoaster of emotions I felt when diagnosed with hypothyroidism. Now it all seems like a distant memory and I'm healthy, which is all that matters.

You will be too, and it's great to have a target! Now you know what to work on and will learn how to best address it. Keep us posted, kay?

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~~ Alexandra
banded 8/20/03
band removed 4/9/07 due to slippage REbanded 8/13/07

340 highest / 210-ish lowest / 275-ish now / less
5'10" -- size 28/30 then, 18/20 now

Vines I'm sorry to hear that something is wrong...but in a way it is better to know what the problem is so it can be fixed or controlled.Sending (((HUGS ))) your way... Hope Dr. can help make sence of it all and get you all better!!

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Jamie
March 18,2005 band date
265/160/140
5'00tall
-105 POUNDS

Vines -

At least they are actively looking for the cause, and not telling you you're full of "it"...

Hopefully if it is Cushings, yours will respond perfectly to treatment and you will be on your way! Woo wooot!

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Donali

Banded 1/23/03/unbanded 7/2/04 (40% erosion)

Sleeved 8/14/09, Dr. Aceves, Mexicali



"There are two ways of spreading light: to be the candle or the mirror that reflects it." - Edith Wharton

I can't add much to the above, but I had to send you a big LBT hug.

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Anne

285/216.5/150

Banded: 7/26/05
Slippage, New Band: 3/21/06
Port Revision: 7/11/06

Is this fatal in humans? Like cancer? Do they have a cure for it for humans? I ask, in humans, because there is no cure for animals. My beloved Jeter had Cushing's K9 Disease. Will you go through the same fatigue and muscle loss?

For the K9:
He had a lot of thirst, muscle loss, easy bruising or tearing of the skin, fatigue/tired, a lot of urine (strong and long pee's), hair loss, dry skin and irregular breathing. Does the human experience the same type of symptoms?

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JENNA

Surgery date: March 23, 2005, Dr. Ortiz TJ
235 highest/175 now/145 goal
Height: 5'9" Age: 33
Starting size: 18/20 Now size: 12

Tentative? When will you know for sure, and what will your treatment be? Big sigh, but at least you're finally getting some answers. Thinking of you here, xoxoxoxoxoXO.

:hug: I'm glad you're finally getting some answers!! & thank the Great Spirit it's treatable! I'll be glad when the tests are over for you. Keep us updated. I know I'm pulling for ya!

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Banded 1/26/05 :usa2:
Dr. Rex Luttrell
Little Rock, AR
4 fills - 2.9cc total
1 unfill 1/9/08 0cc total
1 refill 2/2008 2.0cc total
370/299/175
Total weight loss = 71 lbs.

"We will not be remembered for our words, but for our kind deeds"

It's a step in the right direction. Keep us updated. (hugs)

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Mini goals: [250 REACHED] [230 (50 lbs lost) REACHED] [210 (half way) REACHED]
{195 REACHED WOOO!!!} Current Mini Goal 180 (100 lbs lost)
165 (the weight I remember most form jr. high)
140 (FINAL GOAL)

Hugs Vines. We are all here for you !! <sigh>

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Banded May 23, 2005
Boston, MA

Sorry to hear about this, but hopefully you will get a clear answer soon. ((Hugs)) Hang in there....

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Dianne

Dr Voellinger
Charlotte NC
Surgery 9/25/05 1.7cc
Starting at 268 well on my way to 160!
I plan to continue to feel good!
The band was Gods plan for my life, so I know I will succeed even when troubles come my way.